Heart week from a friend day-5

One of my childhood friend Jasmine Gilgosch who has CHD is doing this heart week post on Facebook. I know allot of people not award of this and she gave me permission to post each one on my blog. I been following her story for a while and I believe you should too. Below is day four and I hope we all learn something because I’ll be posting all of them.

Day #5- Heart Parent; My amazing, wonderful, fantastic, beautiful mother. She took me in when I was six months old and stood by my side through every doctor appointment, EKG, stress test, surgery, and everything else in between. She’s managed my medications, made my doctor appointments, made sure I had a healthy and controlled but normal life. She made sure even though I had CHD I lived like a normal kid. She gave me birthday parties at the bowling alley, movie theater, a hotel for my sweet sixteen! She let me have sleepovers and pool parties. She cooked for me and my friends, let me date, and just live life while maintaining my CHD.

I’m so thankful for this woman. She’s saved my life countless times in more ways than one and in some ways she has no idea about. I’m lucky to call her my mother. I love and miss her so much and can’t wait to see her again in July.

#CHDWeek
#HRHS
#HeartParent
#CHDAwareness
#HeartMonth

Heart week from a friend day-1

One of my childhood friend Jasmine Gilgosch who has CHD is doing this heart week post on Facebook. I know allot of people not award of this and she gave me permission to post each one on my blog. I been following her story for a while and I believe you should too. Below is day one and I hope we all learn something because I’ll be posting all of them today.

HEART WEEK IS FINALLY HERE!!

Day #1- Diagnosis; Hypoplastic Right Heart Syndrome with pulmonary artery atresia. When I was born the right side of my heart was pretty much non existent with this specific kind when I was born the pulmonary valve between the right ventricle and pulmonary artery is not formed. This was very scary back in 1993. It’s still sad when someone is diagnosed with CHD but back then there was no way to really detect it and doctors didn’t know to look for it so I was literally born and apparently wasn’t breathing like any normal baby should have been. It was a rough start from the beginning but I’ve clearly and thankfully made it through.

A new diagnosis that isn’t 100% heart related but can be and is still concerning recently came to me this summer. I had blood clots sitting in my left lung for years apparently and though my hospital stay helped to break them down because they had been sitting for so long I’m now missing the lower lobe of my left lung and unfortunately that’s permanent damage.

My body was already slowing down due to the natural effects of my CHD but losing half a lung definitely hasn’t helped. I still push through and make the most of this life I was blessed to live every single day.

#CHDWeek
#Diagnosis
#HRHS
#HeartMonth

First post of the year

I said to myself I’ll try to post something every day at the beginning of the year, but as you can see that didn’t happen.

The year has been busy so far for me, well it’s kinda my job that keeps me busy. I’ve been working 6 days a week with a double on Sundays since the beginning of the year but at the same time, life is still going well. Plus that’s going to change soon.

I finally interduce my daughter to my girlfriend and I can tell they’re going to be good friends. I and my girlfriend is also doing well. Been together 8 months so far and it’s all love. Planning something nice for her on valentine’s day and I hope she loves it.
My family members are also doing well. Been taking my little nephew to his bus stop lately and I see it as a bonding moment. My great uncle is getting married and invited me and my girlfriend. I said yes but didn’t realize his wedding was gonna be in Baltimore. I and my girlfriend both agree to go and fly on the plane for the very first time but it should be a fun trip.
Co-parenting is going well too. I feel like me and the mother of my daughter been on good sides lately and that’s good in my books. Plus I told her about my girlfriend and she is happy for me.
So far life is keeping me busy but I still enjoy the small moments.
I hope everyone who reads this is having a good year so far and I wish you a good morning.

Family Gatherings

I remember ever since I was a little kid, my grandparents always woke me and my siblings up at 0700 every Christmas to open gifts.

I remember it was always fun opening up games or getting new bikes and much other stuff I enjoy getting as a kid.

I also remember getting gifts and money from other family members but all that change when I got older.

I don’t really feel the Christmas spirit like I did when I was little but I also know I’m not the only one.

Even though I have a daughter, I should feel some type of spirit but nope! My daughter mother side of the family don’t celebrate and I also work tomorrow so that sucks.

If you feel like me, try your best to get in the spirit, buy gifts for people you actually wanna see happy. If you work? Spend some time with your loved ones before you go and if you’ve kids, be ready to smile and take a lot of pictures. Like tonight I’ve to set up my little nephew leapfrog when I get home from work and I can’t wait to see him smile.

I hope tomorrow be a good day for everyone, and if you can make someone smile, do it! Never know how their Christmas going.

https://wordofthedaychallenge.wordpress.com/2018/12/24/family/

Finesse

I find it funny that this is the word of the day, I been hearing/seeing it a lot lately from people, music, shows and many more. But when I hear it, the meaning stand for trying to use someone without getting caught.

But I also understand you can use this word in many ways. Like my job, people can say some of the dumbest things and I’ve to sit there and decide if I wanna say something or just keep my comments to myself.

I always keep my comments to myself. Not really worth trying to argue with a person in this day and age. Giving your opinion facebook can also start a random argument or a debate which I always laugh at.

Just let people be and stay calm with a smile on your face. There some bad people who wanna bring you down, which is sad but hey that’s life for ya, just stay positive and block the negative out and I wish you a good Sunday!

https://wordofthedaychallenge.wordpress.com/2018/11/11/finesse/

Spectre

I find it funny that they use this word today since Halloween is slowly approaching us and I find that cool. Just last Friday me and my girlfriend watch the new Halloween movie with Michael Myers.

We both enjoyed it, I do feel like certain people didn’t have to die but hey, what can you say? It’s just a movie.

But going ghost is always a good thing in life. You sometimes have to be alone to regain your thoughts.

Never be afraid to go ghost on people when you feel like you’ve to better your life. Allot of things is happening in our world today and sometimes you just have to get away. Like from social media for an example.

Never be afraid to go ghost on family members or friends. Your true friends and certain family members would understand and wouldn’t bother you. Hell, even now I only talk to my girlfriend, sisters n brothers, a couple of my homies and my grandparents and I’m okay with that.

Just remember it’s okay to go ghost, we sometimes need to have that alone time because only you can make yourself feel more alive and better and if you notice someone going ghost, just leave them be. They doing it for a good reason.

I hope you all are having a good day. The temperature in Florida has dropped lately which is great and I hope you’re having a good evening.

https://wordofthedaychallenge.wordpress.com/2018/10/23/spectre/

Carnival

I remember growing up I always wanted to go to a carnival but never did until I got older.

I was barely 19 years old when I went to my first carnival and it was fun. I went with my best homeboy and his girlfriend. We also had another friend with us. 

Even for my first time, I had fun, I tried different many foods and deserts. I also played different games and won some of them. I believe I won a big teddy bear for my homie girlfriend since he couldn’t win anything lol.

Never be scared to try different things in life, you never know you might love it and enjoy your time. For example, I, my girlfriend and her sister are going to Halloween Horror night in Orlando Fl, next month. It’s funny that I and my friends always plan to go but never do, so hopefully, I’ll go this year and I honestly can’t wait.

I hope your day was good, and I wish you a good night.

https://wordpress.com/read/blogs/147583099/posts/496

My girl

I felt like writing about her this morning and that’s exactly what I’m going to do. So far I learn a lot from her. So strong and independent that she doesn’t need anyone help because no matter what, she always gets things done.

Whenever she feels stressful, I always do my best to calm her down and tell her to not to worry about things because I’ll be right by her side to take care of them.

She also a wonderful mother to her son and I love that about her. No matter what she is always there for him and will do anything to make sure he is straight.

I also enjoy my time with her whenever we spend time together, but lately, my work schedule gets in the way sometimes but even with that she is still there for me. If I call for food, she there. If I call for a ride to work or home she there and if I ever need anyone to vent too she is there. No matter what she is always there for me even when I aggravated her so time lol but ill make sure I will be there for her.

I honestly can’t wait to talk to her whenever she wakes up, hearing her beautiful voice always makes my day. Her random laughs, the wisdom she speaks and I also love that she trusts me enough to vent to whenever she has problems.

The morning is nice and my little sister is coming over which is cool. I hope you all are having a good Sunday and I wish you a good day

September

It’s finally here, me and my daughter birthday month. Even to this day I still can’t believe our birthdays are four days apart which is cool.

Last year on my 25th birthday I sadly couldn’t celebrate it because of hurricane Irma and since I didn’t evacuate. I stay home and help my grandparents but luckily for my city the hurricane turn at the last second which was good but bad for the other city which suffers a lot of damage. Also, certain areas in my city had no power for a whole week but my area did.

This month came fast and I’m glad it’s here. If you have a birthday in September I just wanna say happy early birthday and I wish I could send you a gift and speak of gifts I’m all ears lol. But the best gift will be to spend time with my daughter, girlfriend and a few friends and family.

It rains like hell for the past couple of days but for the 1st of the month it was all blue and cloudy with some sunshine and I wish you a good day.

Cece Letter#1

I realize your last words that you were probably trying to tell me you were going to sleep which is cool so sorry for calling twice. Ya know, that phone call made my day/night. This whole day I was eager to call or even text you but I knew you were busy and I didn’t want to disturb you.

But that the thing though. I could have text or call anybody else but I only wanted to talk to you and you only. Yeah, my day was boring because of the 16h shift but it was all worth it in the end because I got to talk to you.

I really did enjoy our phone conversations tonight. Like I said before, your voice is so soothing and relaxing that I don’t mind listening to you talk but I still found it cool you enjoy listening to me talk, you made me smile.

Even though your day was busy I still hope you had a good one, the shoes you pick out was nice and I’m sure you’ll pick a perfect outfit and I can’t wait to see you in it.

I wish you sweet dreams and good night sleep and I hope you enjoy the letter.