Heart from a friend day-6

One of my childhood friend Jasmine Gilgosch who has CHD is doing this heart week post on Facebook. I know allot of people not award of this and she gave me permission to post each one on my blog. I been following her story for a while and I believe you should too. Below is day six and I hope we all learn something because I’ll be posting all of them.

Day #6- Care Team; My main three doctors growing up were Dr. Quintessenza, Dr. Giroud, and Dr. Martinez. All three of these men helped save my life whether it was through performing surgery on me or having routine check ups. I’m forever thankful for everything they’ve done for me these last 25 years.

#CHDWeek
#HRHS
#HeartMonth
#CHDAwareness

Heart week from a friend day-5

One of my childhood friend Jasmine Gilgosch who has CHD is doing this heart week post on Facebook. I know allot of people not award of this and she gave me permission to post each one on my blog. I been following her story for a while and I believe you should too. Below is day four and I hope we all learn something because I’ll be posting all of them.

Day #5- Heart Parent; My amazing, wonderful, fantastic, beautiful mother. She took me in when I was six months old and stood by my side through every doctor appointment, EKG, stress test, surgery, and everything else in between. She’s managed my medications, made my doctor appointments, made sure I had a healthy and controlled but normal life. She made sure even though I had CHD I lived like a normal kid. She gave me birthday parties at the bowling alley, movie theater, a hotel for my sweet sixteen! She let me have sleepovers and pool parties. She cooked for me and my friends, let me date, and just live life while maintaining my CHD.

I’m so thankful for this woman. She’s saved my life countless times in more ways than one and in some ways she has no idea about. I’m lucky to call her my mother. I love and miss her so much and can’t wait to see her again in July.

#CHDWeek
#HRHS
#HeartParent
#CHDAwareness
#HeartMonth

Heart week from a friend day-4

One of my childhood friend Jasmine Gilgosch who has CHD is doing this heart week post on Facebook. I know allot of people not award of this and she gave me permission to post each one on my blog. I been following her story for a while and I believe you should too. Below is day four and I hope we all learn something because I’ll be posting all of them.

Day #4- Heart Warrior; I am the Heart Warrior in this post. I’ve fought through so much to get here today. I’ve fought through heart related traumas as well as other traumas life has thrown my way. This last summer I had a huge wake up call and I am so, so happy to be here. I wasn’t supposed to make it to five and yet here I am. I’m finally pursuing my dreams and making a life for myself. I never thought I’d make it this far in life due to heart related and non-heart related issues. I know it’s a little late in life to get started and I still have some worries about my future but I’m determined to fight for as long as I can and make an amazing life for myself.

#CHDWeek
#HRHS
#CHDAwareness
#HeartMonth

Heart week from a friend day-3

One of my childhood friend Jasmine Gilgosch who has CHD is doing this heart week post on Facebook. I know allot of people not award of this and she gave me permission to post each one on my blog. I been following her story for a while and I believe you should too. Below is day three and I hope we all learn something because I’ll be posting all of them.

Day #3- Surgery; I’ve had 3 open heart surgeries and they are as follows:

BT Shunt- I was a day old when they performed this surgery. This was the one where they called up to Boston. Essentially during this surgery the surgeon inserts an artificial tube to provide blood flow to the lungs.

Hemi-Fontan I was a year old when this was performed. This surgery is a preparatory surgery for the final Fontan procedure. During this surgery they focus on the superior vena cava (SVC) with the branch pulmonary arteries, augmentation of the central pulmonary arteries, occlusion of the inflow of the SVC into the right atrium, and elimination of other sources of pulmonary blood flow.

Fontan- I was two years old for this procedure. This surgery connects the pulmonary artery and the inferior vena cava. Once this producer is done oxygen-rich and oxygen-poor blood no longer mix. Unfortunately, there is a down side to the Fontan. Though it’s life saving it causes issues later in life. All Fontan patients will suffer some sort of liver issues in life. It can be minor or major. The price we have to pay to live.

I’ve also had 11 heart caths over the years. The most recent being June of 2018.

Keep in mind surgeries and heart caths are NOT A CURE. They are a temporary fix.

#CHDWeek
#HRHS
#CHDAwareness
#HeartMonth

Heart week from a friend day-1

One of my childhood friend Jasmine Gilgosch who has CHD is doing this heart week post on Facebook. I know allot of people not award of this and she gave me permission to post each one on my blog. I been following her story for a while and I believe you should too. Below is day one and I hope we all learn something because I’ll be posting all of them today.

HEART WEEK IS FINALLY HERE!!

Day #1- Diagnosis; Hypoplastic Right Heart Syndrome with pulmonary artery atresia. When I was born the right side of my heart was pretty much non existent with this specific kind when I was born the pulmonary valve between the right ventricle and pulmonary artery is not formed. This was very scary back in 1993. It’s still sad when someone is diagnosed with CHD but back then there was no way to really detect it and doctors didn’t know to look for it so I was literally born and apparently wasn’t breathing like any normal baby should have been. It was a rough start from the beginning but I’ve clearly and thankfully made it through.

A new diagnosis that isn’t 100% heart related but can be and is still concerning recently came to me this summer. I had blood clots sitting in my left lung for years apparently and though my hospital stay helped to break them down because they had been sitting for so long I’m now missing the lower lobe of my left lung and unfortunately that’s permanent damage.

My body was already slowing down due to the natural effects of my CHD but losing half a lung definitely hasn’t helped. I still push through and make the most of this life I was blessed to live every single day.

#CHDWeek
#Diagnosis
#HRHS
#HeartMonth

Quote #1

I was messing around on Facebook until I saw some inspiration words that I’d to share. It didn’t say who made the quote but I can tell they have a smart understanding about life and probably went though somethings. But here is the quote and I hope you’re having a good Sunday.

You might be poor, your shoes might be broken, but your mind is a palace.
Some good words eh?

Boxing the Ungrateful

Nice word to use today.

Earlier today my girlfriend receive a message from her baby daddy mother. It was about the PlayStation 4 we got him for Christmas.

You probably think it was a positive message but it wasn’t. Just negative. She didn’t like that we got it from the pawn shop. We didn’t want him to break it so we thought that will be the best bet was to get a used one.

I told my girlfriend people with negative souls will always have a bad aura. No matter what words someone who is negative use, you just have to box them out.

I watch my girlfriend do everything she can for her son, I even help her when I’m able. But it seems like no matter what you do, their always that one person to speak badly about you then talk negatively like you not there for them when they ask for help.

I know we all have those types of people in our lives and it cannot be help. You’ll just have to box them out. Just ignore them. When they not making your life better or even putting money in your pockets just ignore them.

Negative people will always be around, just box them out and let’s hope they leave you alone.

I hope everyone had a great Christmas and I you a very good day.

https://wordofthedaychallenge.wordpress.com/2018/12/26/boxing/

Whiff

A word I can relate to because of my job. One thing I learn about doing security, you’re going to take in a lot of different smells.

Like at my post I’m currently working, I smell stuff allot. Either it’s from food, bad bathrooms smell, outside smell or just different smells through the shift.

But even outside of work, smelling something can be good or bad. Like if you walking downtown and smell the alcohol on someone breath or smelling someone good cooking, smelling the laundry stuff when you walk past someone house or cloths.

Be grateful that we can smell different things, I am pretty sure without our nose we will be doom lol. I mean just think about it? We smell stuff before we can even see it but we know it’s there.

I hope everyone is having a good Friday. I myself been working crazy hours lately, so I haven’t had any time to blog besides now. In the meantime, I wish you a good day and a good weekend.

https://wordofthedaychallenge.wordpress.com/2018/11/09/whiff/

Spectre

I find it funny that they use this word today since Halloween is slowly approaching us and I find that cool. Just last Friday me and my girlfriend watch the new Halloween movie with Michael Myers.

We both enjoyed it, I do feel like certain people didn’t have to die but hey, what can you say? It’s just a movie.

But going ghost is always a good thing in life. You sometimes have to be alone to regain your thoughts.

Never be afraid to go ghost on people when you feel like you’ve to better your life. Allot of things is happening in our world today and sometimes you just have to get away. Like from social media for an example.

Never be afraid to go ghost on family members or friends. Your true friends and certain family members would understand and wouldn’t bother you. Hell, even now I only talk to my girlfriend, sisters n brothers, a couple of my homies and my grandparents and I’m okay with that.

Just remember it’s okay to go ghost, we sometimes need to have that alone time because only you can make yourself feel more alive and better and if you notice someone going ghost, just leave them be. They doing it for a good reason.

I hope you all are having a good day. The temperature in Florida has dropped lately which is great and I hope you’re having a good evening.

https://wordofthedaychallenge.wordpress.com/2018/10/23/spectre/

Different kind of insect

I snapped this photo like two or three days ago while I was working

I see these type of bugs all the time in my backyard but they always have the grey color with black hairs.

As you can see in this picture, this one is bright orange with black long hairs sticking out. I was busy when I first notice the bug on the ground but I had to let down the umbrella down first.

I came back looking for it and were able to spot it.

If you see an insect that you see all the time but in a different color. Take a picture.

I’m 26 years old and I never saw this type of bug in an orange color so I find it pretty cool.

Share your photos, people across the world love seeing different things.